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Mairiosa Hall, is our guest author as part of her MSc student Science Communication course.\u00a0In this installment of her three blog series she talks to Lindsey Brown, one of the Faculty\u2019s Public Contributors featured in our Short Film: PPIE: Working With Our Communities<\/a>. They discuss her background, why Patient and Public Involvement and Engagement (PPIE) is important to her and the projects she is involved in.<\/em><\/p>\n Firstly, who is Lindsey Brown? Lindsey is the Co-chair of the Manchester Academy for Healthcare Scientist Education (MAHSE<\/a>) Patient Forum and is also the Lay Representative for Blood Science. MAHSE is a group of partner universities responsible for the development and delivery of healthcare scientist training programmes for a range of specialisms. MAHSE places a high value on patients\u2019 involvement in their programmes, as they embed the good values and beliefs in their students and a patient centred ethos in their professional practice.<\/p>\n Lindsey has numerous Public Contributor roles within both teaching and research including for MSc Immunology and MSc Biochemistry, but what exactly does that involve? For Lindsey these roles have included developing and delivering sessions about PPIE, writing lay summaries and developing patient leaflets. She also works with students providing feedback on lay communication-based assignments and organises talks to connect students with Public Contributors about their lived experience of medical conditions.<\/p>\n Lindsey has also worked closely alongside Faculty researchers across a range of projects related to primary care, including:\u00a0<\/p>\n But this isn\u2019t all, she has also been involved in projects focusing on early cancer detection and mental health.<\/p>\n With Lindsey\u2019s extensive involvement in PPIE, it was only fitting to ask her why she finds this work important. She stated:<\/p>\n \u2018PPIE is important because it ensures that decisions and practices aren\u2019t based on what people think patients will want or need, but on what they actually want and need. It applies to just about everything.<\/em> In research PPIE can uncover new areas of research that clinicians or researchers hadn\u2019t considered or realised would be a priority for patients. Discussions with patients may even give a new perspective on symptoms, or uncover potential links between conditions, or effective coping strategies that are worth further investigation…\u2019<\/em>\u00a0<\/em><\/p>\n \u2018..I also believe that it gives researchers, scientists and clinicians a better understanding of the true impact of a condition or treatment. You can read all about a condition, treatment or equipment, know the symptoms or processes off by heart, but actually hearing someone talk about their lived experience of it is different. It makes it human. It makes the impact more tangible, and I guess unforgettable…\u2019<\/em>\u00a0<\/em><\/p>\n \u2018…I think that PPIE can also be invaluable in helping to ensure that new practices, key messages and research findings are shared with the public in a format and language that is easy to understand.\u2019<\/em><\/p>\n Just over five years ago Lindsey hadn\u2019t even heard of PPIE, but after seeing a few adverts that caught her attention she hasn\u2019t looked back since. She provided me with some excellent advice when conducting PPIE events:<\/p>\n Mairiosa Hall, MSc student<\/p>\n [\/et_pb_text][et_pb_post_nav _builder_version=”3.0.106″ in_same_term=”off” show_prev=”on” show_next=”on” prev_text=”Previous” next_text=”Next” locked=”on” parent_locked=”off” \/][et_pb_comments _builder_version=”3.0.106″ show_avatar=”on” show_reply=”on” show_count=”on” background_layout=”light” header_font_size_tablet=”51″ header_line_height_tablet=”2″ custom_button=”on” button_icon_placement=”right” button_text_color=”#ffffff” button_use_icon=”off” locked=”on” parent_locked=”off” button_text_size__hover_enabled=”off” button_text_size__hover=”null” button_one_text_size__hover_enabled=”off” button_one_text_size__hover=”null” button_two_text_size__hover_enabled=”off” button_two_text_size__hover=”null” button_text_color__hover_enabled=”off” button_text_color__hover=”null” button_one_text_color__hover_enabled=”off” button_one_text_color__hover=”null” button_two_text_color__hover_enabled=”off” button_two_text_color__hover=”null” button_border_width__hover_enabled=”off” button_border_width__hover=”null” button_one_border_width__hover_enabled=”off” button_one_border_width__hover=”null” button_two_border_width__hover_enabled=”off” button_two_border_width__hover=”null” button_border_color__hover_enabled=”off” button_border_color__hover=”null” button_one_border_color__hover_enabled=”off” button_one_border_color__hover=”null” button_two_border_color__hover_enabled=”off” button_two_border_color__hover=”null” button_border_radius__hover_enabled=”off” button_border_radius__hover=”null” button_one_border_radius__hover_enabled=”off” button_one_border_radius__hover=”null” button_two_border_radius__hover_enabled=”off” button_two_border_radius__hover=”null” button_letter_spacing__hover_enabled=”off” button_letter_spacing__hover=”null” button_one_letter_spacing__hover_enabled=”off” button_one_letter_spacing__hover=”null” button_two_letter_spacing__hover_enabled=”off” button_two_letter_spacing__hover=”null” button_bg_color__hover_enabled=”off” button_bg_color__hover=”null” button_one_bg_color__hover_enabled=”off” button_one_bg_color__hover=”null” button_two_bg_color__hover_enabled=”off” button_two_bg_color__hover=”null” \/][et_pb_text admin_label=”Related posts” _builder_version=”3.0.106″ background_layout=”light” locked=”on” parent_locked=”off”]<\/p>\n [\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=”1_3″][et_pb_sidebar _builder_version=”3.0.106″ area=”sidebar-1″ orientation=”left” show_border=”off” background_layout=”light” locked=”on” \/][\/et_pb_column][\/et_pb_section][et_pb_section bb_built=”1″ admin_label=”Connect Title” module_class=”footer-section” _builder_version=”3.17.6″ background_color=”#1d1d1d” custom_padding=”0px||0px|” prev_background_color=”#ffffff” global_module=”380″][et_pb_row admin_label=”row” global_parent=”380″ parallax_method_1=”off” parallax_method_2=”off” parallax_method_3=”off” module_id=”footer-row” _builder_version=”3.17.6″ locked=”off”][et_pb_column type=”1_3″][et_pb_text admin_label=”Contact Us Title” global_parent=”380″ _builder_version=”3.17.6″ text_text_color=”#ffffff” background_size=”initial” background_position=”top_left” background_repeat=”repeat” background_layout=”dark”]<\/p>\n [\/et_pb_text][et_pb_text admin_label=”Contact Us” global_parent=”380″ _builder_version=”3.17.6″ text_text_color=”#ffffff” background_size=”initial” background_position=”top_left” background_repeat=”repeat” background_layout=”dark”]<\/p>\n The Social Responsibility Public Engagement Digest<\/span>: https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/contact\/<\/a><\/p>\n The Faculty Website<\/span>: https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/public-patients\/<\/a><\/p>\n\n
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