{"id":3194,"date":"2022-10-19T15:20:15","date_gmt":"2022-10-19T14:20:15","guid":{"rendered":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/?p=3194"},"modified":"2023-11-28T15:24:24","modified_gmt":"2023-11-28T15:24:24","slug":"experts-by-experience-how-neurodiverse-people-in-manchester-are-advancing-psychological-research","status":"publish","type":"post","link":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/2022\/10\/19\/experts-by-experience-how-neurodiverse-people-in-manchester-are-advancing-psychological-research\/","title":{"rendered":"Experts by Experience: How neurodiverse people in Manchester are advancing psychological research"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; fullwidth=&#8221;on&#8221; next_background_color=&#8221;#000000&#8243; global_module=&#8221;322&#8243;][et_pb_fullwidth_menu global_parent=&#8221;322&#8243; _builder_version=&#8221;3.17.6&#8243; menu_id=&#8221;8&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; background_layout=&#8221;dark&#8221; module_class=&#8221;main-navigation&#8221; \/][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; fullwidth=&#8221;off&#8221; specialty=&#8221;on&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#1d1d1d&#8221;][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243;][et_pb_row_inner locked=&#8221;off&#8221;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243;][et_pb_post_title _builder_version=&#8221;3.0.106&#8243; title=&#8221;on&#8221; meta=&#8221;on&#8221; author=&#8221;on&#8221; date=&#8221;on&#8221; categories=&#8221;on&#8221; comments=&#8221;on&#8221; featured_image=&#8221;on&#8221; featured_placement=&#8221;above&#8221; text_color=&#8221;dark&#8221; text_background=&#8221;off&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; \/][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_layout=&#8221;light&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<p>Article written by Samuel Hurley, Social Responsibility and Public Engagement Intern<\/p>\n<p>Historically, when studying disorders such as autism, psychosis or dementia, those with the disorders were treated as study subjects rather than collaborators. However, people with disorders are increasingly becoming \u2018experts by experience\u2019, playing key roles in the research process themselves. These academic\/patient co-productions are increasingly being shown to provide all kinds of benefits to psychological research and researchers from The University of Manchester are leading the way forward.<\/p>\n<p><a href=\"https:\/\/blogs.bmh.manchester.ac.uk\/files\/2022\/10\/Experts-by-experience.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-27408 alignright\" src=\"https:\/\/blogs.bmh.manchester.ac.uk\/files\/2022\/10\/Experts-by-experience-300x197.jpg\" alt=\"\" width=\"300\" height=\"197\" \/><\/a>Experts by experience can be academics themselves, providing vital insights into gaps in the literature. Karen Leneh Buckle, an autistic person and student at the University, chose to investigate autistic inertia, an overlooked aspect of living with autism. Karen\u2019s 2021 paper in Frontiers in Psychology was the first to describe this difficulty with stopping, starting and changing tasks. The team concluded \u2018Inertia had pervasive effects on participants\u2019 day-to-day activities and wellbeing. This overdue research opens the door to many areas of further investigation to better understand autistic inertia and effective support strategies.<\/p>\n<p>Dr Ellen Poliakoff and Dr Emma Gowen of FBMH\u2019s neuroscience and experimental psychology division are supervising Karen\u2019s research. With autistic collaborator Peter Baimbridge, they have created practical guidelines for autism researchers to consider, increasing involvement, collaboration and trust between academics and the autism community who may have previously felt they were being experimented \u2018on\u2019 rather than with.<\/p>\n<p>Despite clear advantages, one obstacle with co-productive research is that they take longer to run. Emma calls for funders and research institutions to value co-production research and factor in the extra time and money it takes to produce a study, otherwise researchers may be discouraged from this type of collaboration in order to meet pressures to publish high numbers of articles.<\/p>\n<p>To find out more about PPIE: watch our\u00a0<a href=\"https:\/\/youtu.be\/WQN2YzK_agY\">short film<\/a>,\u00a0<a href=\"https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/\">sign up to the monthly Public Engagement Digest<\/a>, visit the PPIE\u00a0<a href=\"mailto:blog%20\">blog<\/a>, follow\u00a0<a href=\"https:\/\/twitter.com\/FBMH_SR\">@FBMH_SR<\/a>, visit our\u00a0<a href=\"https:\/\/www.staffnet.manchester.ac.uk\/bmh\/social-responsibility\/public-and-patient-engagement\/ppie-toolkit\/\">PPIE Toolkit<\/a>\u00a0or contact\u00a0<a href=\"mailto:srbmh@manchester.ac.uk\">srbmh@manchester.ac.uk<\/a>.\u00a0\u00a0<\/p>\n<p>[\/et_pb_text][et_pb_post_nav _builder_version=&#8221;3.0.106&#8243; 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button_text_color__hover=&#8221;null&#8221; button_one_text_color__hover_enabled=&#8221;off&#8221; button_one_text_color__hover=&#8221;null&#8221; button_two_text_color__hover_enabled=&#8221;off&#8221; button_two_text_color__hover=&#8221;null&#8221; button_border_width__hover_enabled=&#8221;off&#8221; button_border_width__hover=&#8221;null&#8221; button_one_border_width__hover_enabled=&#8221;off&#8221; button_one_border_width__hover=&#8221;null&#8221; button_two_border_width__hover_enabled=&#8221;off&#8221; button_two_border_width__hover=&#8221;null&#8221; button_border_color__hover_enabled=&#8221;off&#8221; button_border_color__hover=&#8221;null&#8221; button_one_border_color__hover_enabled=&#8221;off&#8221; button_one_border_color__hover=&#8221;null&#8221; button_two_border_color__hover_enabled=&#8221;off&#8221; button_two_border_color__hover=&#8221;null&#8221; button_border_radius__hover_enabled=&#8221;off&#8221; button_border_radius__hover=&#8221;null&#8221; button_one_border_radius__hover_enabled=&#8221;off&#8221; button_one_border_radius__hover=&#8221;null&#8221; button_two_border_radius__hover_enabled=&#8221;off&#8221; button_two_border_radius__hover=&#8221;null&#8221; button_letter_spacing__hover_enabled=&#8221;off&#8221; button_letter_spacing__hover=&#8221;null&#8221; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover=&#8221;null&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover=&#8221;null&#8221; button_bg_color__hover_enabled=&#8221;off&#8221; button_bg_color__hover=&#8221;null&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover=&#8221;null&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover=&#8221;null&#8221; \/][et_pb_text admin_label=&#8221;Related posts&#8221; _builder_version=&#8221;3.0.106&#8243; background_layout=&#8221;light&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<h1>Related<\/h1>\n<!-- relpost-thumb-wrapper --><div class=\"relpost-thumb-wrapper\"><!-- filter-class --><div class=\"relpost-thumb-container\"><h3>Related posts:<\/h3><div style=\"clear: both\"><\/div><div style=\"clear: both\"><\/div><!-- relpost-block-container --><div class=\"relpost-block-container relpost-block-column-layout\" style=\"--relposth-columns: 3;--relposth-columns_t: 2; 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area=&#8221;sidebar-1&#8243; orientation=&#8221;left&#8221; show_border=&#8221;off&#8221; background_layout=&#8221;light&#8221; locked=&#8221;on&#8221; \/][\/et_pb_column][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;Connect Title&#8221; module_class=&#8221;footer-section&#8221; _builder_version=&#8221;3.17.6&#8243; background_color=&#8221;#1d1d1d&#8221; custom_padding=&#8221;0px||0px|&#8221; prev_background_color=&#8221;#ffffff&#8221; global_module=&#8221;380&#8243;][et_pb_row admin_label=&#8221;row&#8221; global_parent=&#8221;380&#8243; parallax_method_1=&#8221;off&#8221; parallax_method_2=&#8221;off&#8221; parallax_method_3=&#8221;off&#8221; module_id=&#8221;footer-row&#8221; _builder_version=&#8221;3.17.6&#8243; locked=&#8221;off&#8221;][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Contact Us Title&#8221; global_parent=&#8221;380&#8243; _builder_version=&#8221;3.17.6&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<h4><span style=\"color: #ffffff\">Further information<\/span><\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Contact Us&#8221; global_parent=&#8221;380&#8243; _builder_version=&#8221;3.17.6&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<p>\u00a0<\/p>\n<p><span style=\"color: #ffffff\">The Social Responsibility Public Engagement Digest<\/span>: <a href=\"https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/contact\/\">https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/contact\/<\/a><\/p>\n<p><span style=\"color: #ffffff\">The Faculty Website<\/span>: <a href=\"https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/public-patients\/\">https:\/\/www.bmh.manchester.ac.uk\/connect\/social-responsibility\/public-patients\/<\/a><\/p>\n<p><span style=\"color: #ffffff\">The Faculty&#8217;s PPIE Toolkit Resource<\/span><a href=\"https:\/\/www.staffnet.manchester.ac.uk\/bmh\/social-responsibility\/ppie\/\">:\u00a0https:\/\/www.staffnet.manchester.ac.uk\/bmh\/social-responsibility\/ppie\/<\/a><\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Find Us Title&#8221; global_parent=&#8221;380&#8243; _builder_version=&#8221;3.17.6&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<h4>Find Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Address&#8221; global_parent=&#8221;380&#8243; module_id=&#8221;address&#8221; _builder_version=&#8221;3.17.6&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221; use_border_color=&#8221;off&#8221; border_color=&#8221;#ffffff&#8221; border_style=&#8221;solid&#8221;]<\/p>\n<p><span style=\"color: #ffffff\">Simon Building<\/span><\/p>\n<p><a href=\"http:\/\/www.manchester.ac.uk\/discover\/maps\/interactive-map\/\">The University of Manchester<br \/>Oxford Rd<br \/>Manchester<br \/>M13 9PL<br \/>UK<\/a><\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243;][et_pb_text admin_label=&#8221;Connect Title&#8221; global_parent=&#8221;380&#8243; _builder_version=&#8221;3.17.6&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<h4>Connect With Us<\/h4>\n<p>[\/et_pb_text][et_pb_text admin_label=&#8221;Connect Details&#8221; global_parent=&#8221;380&#8243; _builder_version=&#8221;3.17.6&#8243; text_text_color=&#8221;#ffffff&#8221; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; background_layout=&#8221;dark&#8221;]<\/p>\n<p><strong><span style=\"color: #ffffff\">Twitter: <\/span><\/strong><span style=\"color: #ffffff\">@FBMH_SR<\/span><\/p>\n<p><strong><span style=\"color: #ffffff\">Email: <\/span><\/strong><span style=\"color: #ffffff\">srbmh@manchester.ac.uk <\/span><\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>\u00a0<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Article written by Samuel Hurley, Social Responsibility and Public Engagement Intern Historically, when studying disorders such as autism, psychosis or dementia, those with the disorders were treated as study subjects rather than collaborators. However, people with disorders are increasingly becoming \u2018experts by experience\u2019, playing key roles in the research process themselves. These academic\/patient co-productions are [&hellip;]<\/p>\n","protected":false},"author":6766,"featured_media":0,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[33],"tags":[],"class_list":["post-3194","post","type-post","status-publish","format-standard","hentry","category-public-involvement"],"_links":{"self":[{"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/posts\/3194","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/users\/6766"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/comments?post=3194"}],"version-history":[{"count":2,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/posts\/3194\/revisions"}],"predecessor-version":[{"id":3196,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/posts\/3194\/revisions\/3196"}],"wp:attachment":[{"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/media?parent=3194"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/categories?post=3194"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bmh-sr\/wp-json\/wp\/v2\/tags?post=3194"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}