- \n
- The participant consents to the study and provides an email address. This will only be used to send the patient follow-up questionnaires.<\/li>\n
- When a follow up is due (six monthly from the therapy start date), the BSRBR-RA study team will send an email to the participant.<\/li>\n
- The email will have a secure link to enter questionnaires directly.<\/li>\n
- Once the questionnaires have been submitted, the data is stored securely in the BSRBR-RA database.<\/li>\n<\/ul>\n
Why it\u2019s important <\/u><\/strong><\/p>\n
By participating in direct patient follow up, participants will help us to build up the amount of data we have about how their arthritis affects their health over time. More data to analyse means that we can find out even more about the long-term safety and effectiveness of the targeted therapies.\u00a0<\/p>\n
Find out more\u2026<\/u><\/strong><\/p>\n
There is further information for participants on our website here \u2013<\/p>\n
https:\/\/bsrbr.org\/for-participants\/<\/a><\/p>\n
Whether you are a participant, or an NHS healthcare professional, please contact us if you have any further questions about patient follow up questionnaires<\/p>\n
Email \u2013 biologics.register@manchester.ac.uk<\/a><\/p>\n
Tel \u2013 0161 275 1652<\/p>\n
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Related<\/h1>\n
Related posts:<\/h3>
<\/div><\/div><\/div>Working together in research: perspectives from researchers and patient partners<\/h2><\/div><\/div><\/a>
<\/div>Celebrate your registers! Collaboration: Successful collaboration with patient groups<\/h2><\/div><\/div><\/a>
<\/div>Celebrate your registers! Impact: Long-term outcome data<\/h2><\/div><\/div><\/a><\/div>
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Contact Us<\/h4>\n
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+44 (0) 161 306 6000<\/p>\n
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Find Us<\/h4>\n
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The University of Manchester
Oxford Rd
Manchester
M13 9PL
UK<\/a><\/p>\n[\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″][et_pb_text admin_label=”Connect Title” global_parent=”380″ background_layout=”dark” text_text_color=”#ffffff” parent_locked=”off” background_position=”top_left” background_repeat=”repeat” background_size=”initial”]<\/p>\n
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We recently launched our online system for collecting patient data. This is a new exciting development for us and we are thrilled that we have been able to start sending questionnaires to our study participants.How it worksThe participant consents to the study and provides an email address. This will only be used to send the […]<\/p>\n","protected":false},"author":7647,"featured_media":1440,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[9,15],"tags":[],"class_list":["post-1683","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-research","category-rheumatoid-arthritis"],"_links":{"self":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1683","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/users\/7647"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/comments?post=1683"}],"version-history":[{"count":1,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1683\/revisions"}],"predecessor-version":[{"id":1684,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1683\/revisions\/1684"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/media\/1440"}],"wp:attachment":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/media?parent=1683"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/categories?post=1683"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/tags?post=1683"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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