{"id":1710,"date":"2025-03-19T12:04:15","date_gmt":"2025-03-19T12:04:15","guid":{"rendered":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/?p=1710"},"modified":"2025-03-19T12:04:15","modified_gmt":"2025-03-19T12:04:15","slug":"meet-a-register-champion","status":"publish","type":"post","link":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/2025\/03\/19\/meet-a-register-champion\/","title":{"rendered":"Meet a Register Champion"},"content":{"rendered":"<p>[et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; fullwidth=&#8221;on&#8221; next_background_color=&#8221;#000000&#8243; global_module=&#8221;322&#8243;][et_pb_fullwidth_menu global_parent=&#8221;322&#8243; _builder_version=&#8221;3.0.106&#8243; menu_id=&#8221;7&#8243; submenu_direction=&#8221;downwards&#8221; fullwidth_menu=&#8221;off&#8221; background_layout=&#8221;dark&#8221; module_class=&#8221;main-navigation&#8221; \/][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; fullwidth=&#8221;off&#8221; specialty=&#8221;on&#8221; prev_background_color=&#8221;#000000&#8243; next_background_color=&#8221;#1d1d1d&#8221;][et_pb_column type=&#8221;2_3&#8243; specialty_columns=&#8221;2&#8243;][et_pb_row_inner locked=&#8221;off&#8221;][et_pb_column_inner type=&#8221;4_4&#8243; saved_specialty_column_type=&#8221;2_3&#8243;][et_pb_post_title _builder_version=&#8221;3.17.6&#8243; featured_placement=&#8221;above&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; date_format=&#8221;j M Y&#8221; \/][et_pb_text _builder_version=&#8221;3.17.6&#8243; background_layout=&#8221;light&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<h3>Introducing Anne-Marie, one of our fantastic register champions on the BSRBR-RA Study. We asked Anne-Marie some questions on how she recruits participants successfully, and how she stays on top of the follow ups.<\/h3>\n<p><span style=\"text-decoration: underline\"><strong>How do you identify eligible participants for BSRBR-RA?<img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-1715 alignright\" src=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615-300x283.jpg\" alt=\"\" width=\"300\" height=\"283\" srcset=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615-300x283.jpg 300w, https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615-150x142.jpg 150w, https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615-250x236.jpg 250w, https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615-350x331.jpg 350w, https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2025\/03\/Screenshot-2025-03-19-114615.jpg 454w\" sizes=\"(max-width: 300px) 100vw, 300px\" \/><\/strong><\/span><\/p>\n<p>Each month our Research Pharmacy Team compiles a list of patients who have received a biologic the previous month. I then quickly filter out the names I recognise from being on the study already. I then read the patient&#8217;s last clinic letter which will state the diagnosis, if they have either started a new drug recently or are continuing long-term treatment. Once I wheedle out the ineligible patients, I then go through each potential patient more thoroughly to check their eligibility.<\/p>\n<p><span style=\"text-decoration: underline\"><strong>Have you overcome any barriers to recruitment?<\/strong><\/span><\/p>\n<p>By telephoning the patients first of all to ask if I can send them the information. If the patient doesn&#8217;t have a face-to-face appointment, I make up a bundle with the PIS, Outreach Letter, Transparency letter (all the reading only material).<\/p>\n<p>In a separate bundle I add the ICF, the HAQ, EuroQOL (forms that need completing by the patient) and a pre-paid envelope with a compliment slip which contains instructions of what to do. This makes it as simple as possible for them to take part without any disruption to their lives.<\/p>\n<p><span style=\"text-decoration: underline\"><strong>How do you manage to keep on top of the follow up for participants?<\/strong><\/span><\/p>\n<p>I can get overwhelmed when I logon and see a lot of outstanding follow ups, and I like the colour-coded system. When I feel I have too many to do, I aim to complete the red ones first, then the pink. It&#8217;s really satisfying to see them all turn green.<\/p>\n<p><strong><span style=\"text-decoration: underline\">What advice would you offer someone who is starting work on the register at their hospital?<\/span><\/strong><\/p>\n<ul>\n<li>The remote consent is an extremely easy process and as we have funding for pre-paid envelopes. It makes the process extremely easy for patients, so they are usually quite happy to participate.<\/li>\n<li>Try to keep on top of your follow ups, as before you know it, they are due again.<\/li>\n<li>Finally, log in as often as you can just to check for queries.<\/li>\n<\/ul>\n<p><span style=\"text-decoration: underline\"><strong>Final Thoughts&#8230;<\/strong><\/span><\/p>\n<p>It initially took me a long time to get to grips with study, pre-Covid. Mainly because I &#8216;inherited&#8217; it overnight, having never worked in Rheumatology. I had to learn everything from scratch. I feel like I have come a long way since then, mainly because of the support I have received from the BSRBR-RA study team.<\/p>\n<p><strong><em>Anne-Marie is a Clinical Research Practitioner at Kettering General Hospital.<\/em><\/strong><\/p>\n<p><em>If you have any questions about the BSRBR-RA study, please get in touch!<\/em><\/p>\n<p><em>Email &#8211; biologics.register@manchester.ac.uk<\/em><\/p>\n<p><em>Telephone &#8211; 0161 275 1652<\/em><\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][et_pb_post_nav _builder_version=&#8221;3.0.106&#8243; in_same_term=&#8221;off&#8221; show_prev=&#8221;on&#8221; show_next=&#8221;on&#8221; prev_text=&#8221;Previous&#8221; next_text=&#8221;Next&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; \/][et_pb_comments _builder_version=&#8221;3.0.106&#8243; show_avatar=&#8221;on&#8221; show_reply=&#8221;on&#8221; show_count=&#8221;on&#8221; background_layout=&#8221;light&#8221; header_font_size_tablet=&#8221;51&#8243; header_line_height_tablet=&#8221;2&#8243; custom_button=&#8221;on&#8221; button_icon_placement=&#8221;right&#8221; button_text_color=&#8221;#ffffff&#8221; button_use_icon=&#8221;off&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221; button_text_size__hover_enabled=&#8221;off&#8221; button_text_size__hover=&#8221;null&#8221; button_one_text_size__hover_enabled=&#8221;off&#8221; button_one_text_size__hover=&#8221;null&#8221; button_two_text_size__hover_enabled=&#8221;off&#8221; button_two_text_size__hover=&#8221;null&#8221; button_text_color__hover_enabled=&#8221;off&#8221; button_text_color__hover=&#8221;null&#8221; button_one_text_color__hover_enabled=&#8221;off&#8221; button_one_text_color__hover=&#8221;null&#8221; button_two_text_color__hover_enabled=&#8221;off&#8221; button_two_text_color__hover=&#8221;null&#8221; button_border_width__hover_enabled=&#8221;off&#8221; button_border_width__hover=&#8221;null&#8221; button_one_border_width__hover_enabled=&#8221;off&#8221; button_one_border_width__hover=&#8221;null&#8221; button_two_border_width__hover_enabled=&#8221;off&#8221; button_two_border_width__hover=&#8221;null&#8221; button_border_color__hover_enabled=&#8221;off&#8221; button_border_color__hover=&#8221;null&#8221; button_one_border_color__hover_enabled=&#8221;off&#8221; button_one_border_color__hover=&#8221;null&#8221; button_two_border_color__hover_enabled=&#8221;off&#8221; button_two_border_color__hover=&#8221;null&#8221; button_border_radius__hover_enabled=&#8221;off&#8221; button_border_radius__hover=&#8221;null&#8221; button_one_border_radius__hover_enabled=&#8221;off&#8221; button_one_border_radius__hover=&#8221;null&#8221; button_two_border_radius__hover_enabled=&#8221;off&#8221; button_two_border_radius__hover=&#8221;null&#8221; button_letter_spacing__hover_enabled=&#8221;off&#8221; button_letter_spacing__hover=&#8221;null&#8221; button_one_letter_spacing__hover_enabled=&#8221;off&#8221; button_one_letter_spacing__hover=&#8221;null&#8221; button_two_letter_spacing__hover_enabled=&#8221;off&#8221; button_two_letter_spacing__hover=&#8221;null&#8221; button_bg_color__hover_enabled=&#8221;off&#8221; button_bg_color__hover=&#8221;null&#8221; button_one_bg_color__hover_enabled=&#8221;off&#8221; button_one_bg_color__hover=&#8221;null&#8221; button_two_bg_color__hover_enabled=&#8221;off&#8221; button_two_bg_color__hover=&#8221;null&#8221; \/][et_pb_text admin_label=&#8221;Related posts&#8221; _builder_version=&#8221;3.0.106&#8243; background_layout=&#8221;light&#8221; locked=&#8221;on&#8221; parent_locked=&#8221;off&#8221;]<\/p>\n<h1>Related<\/h1>\n<!-- relpost-thumb-wrapper --><div class=\"relpost-thumb-wrapper\"><!-- filter-class --><div class=\"relpost-thumb-container\"><h3>Related posts:<\/h3><div style=\"clear: both\"><\/div><div style=\"clear: both\"><\/div><!-- relpost-block-container --><div class=\"relpost-block-container relpost-block-column-layout\" style=\"--relposth-columns: 3;--relposth-columns_t: 2; --relposth-columns_m: 2\"><a href=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/2026\/03\/09\/recruitment-workshop\/\"class=\"relpost-block-single\" ><div class=\"relpost-custom-block-single\"><div class=\"relpost-block-single-image rpt-lazyload\" aria-label=\"The logo for the BSRBR-RA study\" role=\"img\" data-bg=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2024\/03\/BSR_RheumatoidArthritis_Logo_LockUp_Positive_Artwork_RGB-150x150.png\" style=\"background: transparent no-repeat scroll 0% 0%; width: 150px; height: 150px; aspect-ratio: 1\/1;\"><\/div><div class=\"relpost-block-single-text\"  style=\"height: 75px;font-family: Arial;  font-size: 12px;  color: #333333;\"><h2 class=\"relpost_card_title\">Recruitment Workshop<\/h2><\/div><\/div><\/a><a href=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/2024\/01\/17\/nihr-associate-principal-investigator-scheme\/\"class=\"relpost-block-single\" ><div class=\"relpost-custom-block-single\"><div class=\"relpost-block-single-image rpt-lazyload\" aria-label=\"An illustration of scientists at work in a lab.\" role=\"img\" data-bg=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2024\/01\/illustration-of-scientists-150x150.jpg\" style=\"background: transparent no-repeat scroll 0% 0%; width: 150px; height: 150px; aspect-ratio: 1\/1;\"><\/div><div class=\"relpost-block-single-text\"  style=\"height: 75px;font-family: Arial;  font-size: 12px;  color: #333333;\"><h2 class=\"relpost_card_title\">NIHR Associate Principal Investigator Scheme<\/h2><\/div><\/div><\/a><a href=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/2025\/05\/19\/celebrating-our-bsrbr-ra-sites\/\"class=\"relpost-block-single\" ><div class=\"relpost-custom-block-single\"><div class=\"relpost-block-single-image rpt-lazyload\" aria-label=\"The logo for the BSRBR-RA study\" role=\"img\" data-bg=\"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-content\/uploads\/sites\/440\/2024\/03\/BSR_RheumatoidArthritis_Logo_LockUp_Positive_Artwork_RGB-150x150.png\" style=\"background: transparent no-repeat scroll 0% 0%; width: 150px; height: 150px; aspect-ratio: 1\/1;\"><\/div><div class=\"relpost-block-single-text\"  style=\"height: 75px;font-family: Arial;  font-size: 12px;  color: #333333;\"><h2 class=\"relpost_card_title\">Celebrating our BSRBR-RA sites<\/h2><\/div><\/div><\/a><\/div><!-- close relpost-block-container --><div style=\"clear: both\"><\/div><\/div><!-- close filter class --><\/div><!-- close relpost-thumb-wrapper -->\n<p>[\/et_pb_text][\/et_pb_column_inner][\/et_pb_row_inner][\/et_pb_column][et_pb_column type=&#8221;1_3&#8243;][et_pb_sidebar _builder_version=&#8221;3.0.106&#8243; area=&#8221;sidebar-1&#8243; orientation=&#8221;left&#8221; show_border=&#8221;off&#8221; background_layout=&#8221;light&#8221; locked=&#8221;on&#8221; \/][\/et_pb_column][\/et_pb_section][et_pb_section bb_built=&#8221;1&#8243; admin_label=&#8221;Connect Title&#8221; custom_padding=&#8221;0px||0px|&#8221; _builder_version=&#8221;3.0.90&#8243; background_color=&#8221;#1d1d1d&#8221; module_class=&#8221;footer-section&#8221; 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We asked Anne-Marie some questions on how she recruits participants successfully, and how she stays on top of the follow ups. How do you identify eligible participants for BSRBR-RA? Each month our Research Pharmacy Team compiles a list of patients who have received [&hellip;]<\/p>\n","protected":false},"author":7647,"featured_media":1713,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_exactmetrics_skip_tracking":false,"footnotes":""},"categories":[13,18,22],"tags":[],"class_list":["post-1710","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-healthcare-professionals","category-interview","category-register-champions"],"_links":{"self":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1710","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/users\/7647"}],"replies":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/comments?post=1710"}],"version-history":[{"count":6,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1710\/revisions"}],"predecessor-version":[{"id":1720,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/posts\/1710\/revisions\/1720"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/media\/1713"}],"wp:attachment":[{"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/media?parent=1710"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/categories?post=1710"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/blogs.manchester.ac.uk\/bsrbr-blog\/wp-json\/wp\/v2\/tags?post=1710"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}