{"id":2040,"date":"2021-10-15T12:18:39","date_gmt":"2021-10-15T11:18:39","guid":{"rendered":"https:\/\/blogs.manchester.ac.uk\/centre-for-epidemiology\/?p=2040"},"modified":"2021-10-15T12:21:38","modified_gmt":"2021-10-15T11:21:38","slug":"people-not-numbers-mymskstory","status":"publish","type":"post","link":"https:\/\/blogs.manchester.ac.uk\/centre-for-epidemiology\/2021\/10\/15\/people-not-numbers-mymskstory\/","title":{"rendered":"People, Not Numbers – #MyMSKStory"},"content":{"rendered":"

[et_pb_section bb_built=”1″ admin_label=”section” fullwidth=”on” next_background_color=”#000000″ global_module=”322″][et_pb_fullwidth_menu global_parent=”322″ _builder_version=”3.0.106″ menu_id=”7″ submenu_direction=”downwards” fullwidth_menu=”off” background_layout=”dark” module_class=”main-navigation” \/][\/et_pb_section][et_pb_section bb_built=”1″ fullwidth=”off” specialty=”on” next_background_color=”#000000″ prev_background_color=”#000000″][et_pb_column type=”2_3″ specialty_columns=”2″][et_pb_row_inner locked=”off”][et_pb_column_inner type=”4_4″ saved_specialty_column_type=”2_3″][et_pb_post_title _builder_version=”3.0.106″ title=”on” meta=”on” author=”on” date=”on” categories=”on” comments=”on” featured_image=”on” featured_placement=”above” text_color=”dark” text_background=”off” locked=”on” parent_locked=”off” \/][et_pb_text _builder_version=”3.17.6″ background_layout=”light” parent_locked=”off”]<\/p>\n

Our colleagues at <\/span>Vocal<\/span><\/a> have collaborated with people living with a musculoskeletal (MSK) condition and MSK researchers from the <\/span>NIHR Manchester Biomedical Research Centre<\/span><\/a> to share stories about physical movement, self-management, and research. Search #MyMSKStory on <\/span>Facebook<\/span><\/a> and <\/span>Twitter<\/span><\/a> or follow @letsgetvocal to find out more.\u00a0<\/span><\/p>\n

Here\u2019s Dr Jenny Humphreys\u2019 story:<\/span>\u00a0<\/span><\/p>\n

I\u2019ve always wanted to do research, even before I knew what kind of doctor I wanted to be.\u00a0 When I got a junior doctor role in rheumatology after qualifying, it seemed like the perfect fit; a specialty where I could get to know my patients over a long time and where there was a need to better address challenges in diagnosing and managing conditions.\u00a0 I realised that there was a lot of research taking place, trying to improve the lives of patients with musculoskeletal conditions.<\/span><\/p>\n

During my PhD, I was preparing a graph of some results, grouping patients with different types of arthritis.\u00a0 I decided to use a Venn diagram to show people who met one set of criteria, another set or both.\u00a0 But there were patients, <\/span>people<\/span><\/i>, in the study who didn\u2019t fit into either circle.\u00a0 They didn\u2019t have the right blood test or x-ray results to meet either criteria.\u00a0 The moment I noticed the people outside the circle, really noticed them, was when it clicked.\u00a0 As I was putting the numbers in the diagram I realised those people wouldn\u2019t be counted at all, because they didn\u2019t fit into any of the boxes.\u00a0 I realised that I wanted to focus my research in the future on people with arthritis who were being missed or left out.<\/span><\/p>\n

\"\"<\/p>\n

After this, I became more aware of the other ways that people might be left behind in arthritis research.\u00a0 As a postdoctoral researcher, I learnt more about the fact that much of health research often has a blind spot, because it doesn\u2019t include people from a range of ethnic groups or social classes who are affected by the condition.\u00a0 For example, clinical trials from the United States may recruit as little as 13% non-white participants, despite them making up 30% of the population. As a consequence, results from many research studies in arthritis may not apply or be relevant to them<\/span>.<\/span><\/i><\/p>\n

\"\"<\/p>\n

It\u2019s clear that some researchers have considered certain groups as \u2018hard to reach\u2019 for research but I believe we need to challenge these perceptions. We must change how we approach research to include them.\u00a0 Even a group not traditionally thought of as marginalised, children, are less likely to have appropriate research information on their diseases because they are considered more difficult and challenging to study.\u00a0 In my research I explore ways to address these challenges.\u00a0 One approach is to use information collected as part of routine care, such as GP records, to research arthritis.\u00a0 Although not perfect, this is a more inclusive approach because it does not depend on individuals volunteering to take part, which requires availability of time and money.<\/span><\/p>\n

Some people might feel as a white, professional woman, it\u2019s not my place to talk about these issues of discrimination and exclusion in research, because it has not been my lived experience.\u00a0 However, I believe that I should use my position of privilege and power to draw attention to the bias in research and medicine, whether it is due to poverty, race, class, age or any other reason.\u00a0 Taking part in this storytelling project, and hearing personal stories from such a diverse group of people, and then seeing them come to life with the images, has been the peak of this ambition for me, but there is more work to do, and more to come.\u00a0 Widening participation in research, bringing equality, diversity and genuine representation of our communities within MSK research has to be the focus for the future.<\/span><\/p>\n

\"\"<\/p>\n

Interested in shaping research? Join Vocal\u2019s friendly <\/span>Musculoskeletal Research User Network<\/span><\/a> and #GetVocal<\/span>\u00a0<\/span><\/p>\n

Learn more about\u00a0Dr Jennifer Humphreys and her research here<\/a>.<\/p>\n

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Fruitcake cake danish oat cake powder jujubes caramels chupa chups jelly beans. Bonbon tootsie roll jelly souffl\u00e9 fruitcake tootsie roll jelly sesame snaps cake. Gingerbread cotton candy oat cake jelly-o candy apple pie powder. Marshmallow powder chocolate bar sugar plum chocolate bar wafer marshmallow sugar plum bear claw. Marzipan macaroon bonbon sweet powder chocolate cake donut toffee carrot cake. Ice cream apple pie pastry. Wafer biscuit brownie bonbon. Pudding muffin tiramisu powder biscuit souffl\u00e9 biscuit chupa chups chupa chups. Powder lemon drops pastry apple pie lemon drops cotton candy. Pudding macaroon halvah jelly brownie drag\u00e9e sweet roll caramels jelly beans. Cookie biscuit lollipop. Donut jelly beans wafer marzipan powder oat cake gummies icing chocolate bar. Dessert fruitcake donut cupcake. Jelly macaroon brownie gingerbread cupcake donut fruitcake.<\/span><\/p>\n

Sweet lemon drops topping brownie lollipop gummies biscuit candy canes donut. Jelly-o fruitcake macaroon. Muffin topping pudding liquorice danish chupa chups carrot cake cake. Sugar plum chupa chups apple pie chocolate cake bear claw chupa chups brownie topping carrot cake. Pastry gummi bears chocolate cake. Cake chocolate bar sugar plum icing cotton candy. Chupa chups halvah jelly macaroon candy canes danish halvah bonbon. Pie chupa chups sweet roll drag\u00e9e pie wafer pudding. Souffl\u00e9 jujubes jelly liquorice pudding pastry cotton candy pastry. Chupa chups jelly beans carrot cake caramels ice cream fruitcake. Candy gingerbread powder sugar plum macaroon candy oat cake tiramisu. Souffl\u00e9 drag\u00e9e sesame snaps powder topping halvah. Croissant gummies dessert donut drag\u00e9e biscuit toffee. Donut ice cream lollipop.<\/span><\/p>\n

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Related<\/h1>\n

Related posts:<\/h3>
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Research Improves Lives - #MyMSKStory<\/h2><\/div><\/div><\/a><\/div>
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Contact Us<\/h4>\n

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+44 (0) 161 306 6000<\/p>\n

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Find Us<\/h4>\n

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The University of Manchester
Oxford Rd
Manchester
M13 9PL
UK<\/a><\/p>\n

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