The BSRBR-RA regularly collaborates with patient support groups to guide the direction of their research.

This involvement can take place through the ‘Registers and Research Committee’ at the British Society for Rheumatology, where lay members and patient groups are invited to comment on research papers or review study documentation. Additionally, the BSRBR-RA sometimes partners with patient advocacy groups. 

National Rheumatoid Arthritis Society (NRAS)

In January 2023, BSRBR-RA collaborated with the National Rheumatoid Arthritis Society (NRAS) to launch a survey aimed at individuals with RA to identify research priorities. Within just two hours, 994 people with rheumatoid arthritis had completed the survey, highlighting their eagerness to have their voices heard. Some results are shown in the graphic here: 

Many of these issues have been addressed in existing research, which demonstrates that it is important that these results are shared in an understandable format with the wider community. Lay summaries and infographics for the research papers are produced and are now shared with patient organisations to distribute to their members – these can all be found on the study website. 

More information: 

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Contact us – biologics.register@manchester.ac.uk 

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